1 person in 50 are carriers of the abnormal gene that causes SMA
Dates of Remembrance
October 13, 2009 - Ann Marie Grimes was born
January 27, 2010 - the first time our family heard the words SMA (spinal muscular atrophy)
February 13, 2010 - official SMA Type I diagnosis with genetic testing
August 6, 2010 - Annie passed away at only 9 months and 24 days old
August is SMA Awareness Month!
August is SMA Awareness Month and families and friends around the country are joining together to help promote awareness of this devastating disease so that we can one day see a world where SMA is treatable and curable.
Click HERE to donate in Annie's memory!
Upcoming Events:
SMA Candle Lighting
Second Saturday in August!
Please join us in honoring the warriors and angels of SMA... support families & friends by lighting a candle at sunset to remember those SMA Angels who have lost their battle with SMA and to honor those SMA Warriors who are fighting everyday. As this event continues to grow we hope to bring awareness about SMA and also unity to the families living with it as we join spreading the light of our candles around the world. We hope you will join us by lighting your candle for SMA families everywhere. Just light a candle from wherever you are at this time.
Post a picture of your lighted candle to
Annie's facebook page!
Post a picture of your lighted candle to
Annie's facebook page!
Donate Now
in Annie's memory to
CureSMA!
**Be sure to choose "Type of Donation: In Memory of"
in Annie's memory to
CureSMA!
**Be sure to choose "Type of Donation: In Memory of"
Connect with us:
Connect with CureSMA.org:
