Scroll down to view all the latest events!
SMA Candle Lighting
Every second Saturday in August
On the second Saturday of August, CureSMA.org host a candle lighting to remember those we have lost to this terrible disease and those that are still fighting everyday. Thank you to all of those lighting your candle for Our Annie Girl.
Every second Saturday in August
On the second Saturday of August, CureSMA.org host a candle lighting to remember those we have lost to this terrible disease and those that are still fighting everyday. Thank you to all of those lighting your candle for Our Annie Girl.
Beta Service Project
December 8, 2016
Garrett, Annie's big brother, chose CureSMA.org for his Beta Service Project. He sold hand painted wood picture frames and SOLD OUT! Everyone loved these picture perfect gifts. He made various sizes and each frame was given an "Annie" picture. He sold 30 frames that night and got more orders after the event. He proudly donated 100% of his proceeds which was over $300 to Cure SMA in memory of Annie. We are so proud of you Garrett!
December 8, 2016
Garrett, Annie's big brother, chose CureSMA.org for his Beta Service Project. He sold hand painted wood picture frames and SOLD OUT! Everyone loved these picture perfect gifts. He made various sizes and each frame was given an "Annie" picture. He sold 30 frames that night and got more orders after the event. He proudly donated 100% of his proceeds which was over $300 to Cure SMA in memory of Annie. We are so proud of you Garrett!
Cones for a Cure
August 6, 2016
Cones for a Cure was held on August 6, 2016, on Annie's 6th angel date. Her big brother Garrett and little sisters, Lainey and Emi hosted the event at their neighborhood playground. They served 100+ sno cones and raised $1,200 for CureSMA.org. Thank you to everyone who came out to support us.
**Donation can still be accepted online. Click HERE!
August 6, 2016
Cones for a Cure was held on August 6, 2016, on Annie's 6th angel date. Her big brother Garrett and little sisters, Lainey and Emi hosted the event at their neighborhood playground. They served 100+ sno cones and raised $1,200 for CureSMA.org. Thank you to everyone who came out to support us.
**Donation can still be accepted online. Click HERE!
2015 SMA National Candle Lighting
August 8, 2015
This is a picture I never thought I would be posting. My husband and I are high school sweethearts and have been married 15 years. We had never heard of Spinal Muscular Atrophy, the #1 genetic killer in babies, until our Annie Girl was born in October 2009. Sadly, we were unknowingly carriers of the gene that causes SMA. After a healthy pregnancy and delivery, Annie was diagnosed at 4 months of age. She only lived 9 months and 24 days. #knowSMA
Tonight we are lighting our candle for our precious Annie Girl who earned her angel wings on August 6, 2010 and for all the warriors who continue to fight everyday. Please join us tonight and light a candle and post it HERE!
We miss you Annie Girl...always and forever. Cure SMA
(View the slideshow of the many candles lit below! THANK YOU to everyone who supported us.)
August 8, 2015
This is a picture I never thought I would be posting. My husband and I are high school sweethearts and have been married 15 years. We had never heard of Spinal Muscular Atrophy, the #1 genetic killer in babies, until our Annie Girl was born in October 2009. Sadly, we were unknowingly carriers of the gene that causes SMA. After a healthy pregnancy and delivery, Annie was diagnosed at 4 months of age. She only lived 9 months and 24 days. #knowSMA
Tonight we are lighting our candle for our precious Annie Girl who earned her angel wings on August 6, 2010 and for all the warriors who continue to fight everyday. Please join us tonight and light a candle and post it HERE!
We miss you Annie Girl...always and forever. Cure SMA
(View the slideshow of the many candles lit below! THANK YOU to everyone who supported us.)
Savannah Sand Gants Game
July 20, 2012-Savannah, GA
Thank you to Howard Family Dental and Dr. Christy & Staff for hosting a night at the ballpark...4 Annie! We are so thankful and honored by your continued support. $1,089 was raised for Families of SMA in Annie's memory.
July 20, 2012-Savannah, GA
Thank you to Howard Family Dental and Dr. Christy & Staff for hosting a night at the ballpark...4 Annie! We are so thankful and honored by your continued support. $1,089 was raised for Families of SMA in Annie's memory.
3rd Annual Crop 4 Annie
April 21, 2012
Thank you to everyone that helped support our 3rd Annual Crop 4 Annie event. $2,334 was raised for Families of SMA in Annie's memory! We had approx 35 scrapbookers that came out and spent the day with us.
April 21, 2012
Thank you to everyone that helped support our 3rd Annual Crop 4 Annie event. $2,334 was raised for Families of SMA in Annie's memory! We had approx 35 scrapbookers that came out and spent the day with us.
Our Annie Girl Cookbook
October 13, 2011 - present
Our Annie Girl Cookbook was started by Annie's Nana, Shelia Violette. We released the books on Annie's 2nd birthday, October 13th. We had a great response and sales are still ongoing. From October 13, 2011-December 31,2011, we have raised $2,310 for Families of SMA. The cookbook has color pictures, SMA facts and over 300 recipes from all over the US. THANK YOU to everyone who has supported our efforts. Cookbooks can still be ordered online under "Shop Annie Girl".
October 13, 2011 - present
Our Annie Girl Cookbook was started by Annie's Nana, Shelia Violette. We released the books on Annie's 2nd birthday, October 13th. We had a great response and sales are still ongoing. From October 13, 2011-December 31,2011, we have raised $2,310 for Families of SMA. The cookbook has color pictures, SMA facts and over 300 recipes from all over the US. THANK YOU to everyone who has supported our efforts. Cookbooks can still be ordered online under "Shop Annie Girl".
Sharing Our SMA Story
Region 3 Women's Conference- October 22, 2011
THANK YOU to UAW Local 2164 for hosting Region 3 Women's Conference and giving us the opportunity to share our story and raise SMA awareness! These hard working women of The General Motors Plant in Bowling Green, KY and surrounding states donated to several charities including $598 to Families of Spinal Muscular Atrophy (FSMA) in Annie's memory! We were able to share our story, educate others and meet new friends. 105 women were in attendance. A special thank you to Donna Horton, Annie Girl Supporter, for coordinating this special event.
Happy 2nd Birthday Annie!
On Thursday, October 13th, 2011, we will be remembering Our Annie Girl on what would have been her 2nd birthday. Help us raise SMA awareness by sharing our story with others! Support the efforts in finding treatment and a cure by making a donation to
Families of SMA in Annie's memory!
SMA Awareness Night at the Ballpark
Bowling Green Hotrods - August 27, 2011
On August 27th, the Bowling Green Hotrods hosted the 1st Annual SMA Awareness Night at the Ballpark! THANK YOU to everyone who sported their Annie Girl pink & green during the game. The Hotrods played a SMA tribute video before the game reaching nearly 4500 people. Annie's big brother, Garrett threw out the first pitch! We sold a total of 96 tickets! Families of Spinal Muscular Atrophy (FSMA) will be receiving $280 in Annie's memory along with another $350 from t-shirt sales and personal donations! We look forward to to growing this event in 2012!
Bowling Green Hotrods - August 27, 2011
On August 27th, the Bowling Green Hotrods hosted the 1st Annual SMA Awareness Night at the Ballpark! THANK YOU to everyone who sported their Annie Girl pink & green during the game. The Hotrods played a SMA tribute video before the game reaching nearly 4500 people. Annie's big brother, Garrett threw out the first pitch! We sold a total of 96 tickets! Families of Spinal Muscular Atrophy (FSMA) will be receiving $280 in Annie's memory along with another $350 from t-shirt sales and personal donations! We look forward to to growing this event in 2012!
Watch the SMA Tribute Video Below.
SMA Awareness Day
La Petite Academy - August 25, 2011
Thank You to La Petite Academy's Mrs. Linda & Mrs. Kim for coordinating SMA Awareness Day...4 Annie! Today the teachers of La Petite wore 4AnnieGirl.com t-shirts to raise awareness in Annie's memory! Annie attended La Petite in January 2010 just weeks before her diagnosis. Flyers were posted throughout the childcare center so parents could learn more about SMA! Thank You for all your support during our journey!
La Petite Academy - August 25, 2011
Thank You to La Petite Academy's Mrs. Linda & Mrs. Kim for coordinating SMA Awareness Day...4 Annie! Today the teachers of La Petite wore 4AnnieGirl.com t-shirts to raise awareness in Annie's memory! Annie attended La Petite in January 2010 just weeks before her diagnosis. Flyers were posted throughout the childcare center so parents could learn more about SMA! Thank You for all your support during our journey!
Ashley Furniture Homestore Community Appreciation Night
August 19, 2011
On August 19, 2011, any customer who donated $20 to Families of SMA at Ashley Furniture Homestore in Bowling Green, Kentucky received 20% off of their entire purchase! Ashley Homestore also matched every donation! We were very honored to send Families of SMA a total of $2,560 from this event! Thank you to Ashley Furniture Homestore and their staff for supporting SMA!
August 19, 2011
On August 19, 2011, any customer who donated $20 to Families of SMA at Ashley Furniture Homestore in Bowling Green, Kentucky received 20% off of their entire purchase! Ashley Homestore also matched every donation! We were very honored to send Families of SMA a total of $2,560 from this event! Thank you to Ashley Furniture Homestore and their staff for supporting SMA!
SMA Display Boards - Medical Center of BG
Awareness Month - August 1 thru August 31
Raising SMA Awareness at the Medical Center of Bowling Green! Thank You to Shelia Violette (a/k/a Nana) and her supervisor, Jennifer for allowing us to display our SMA board in the lobby of Out Patient Registration for SMA Awareness Month! The board explained the definition of SMA, symptoms, facts and shared Annie's story. It also held 4AnnieGirl.com cards so people could visit our website to learn more. The board is currently displayed for the entire month of August!
Awareness Month - August 1 thru August 31
Raising SMA Awareness at the Medical Center of Bowling Green! Thank You to Shelia Violette (a/k/a Nana) and her supervisor, Jennifer for allowing us to display our SMA board in the lobby of Out Patient Registration for SMA Awareness Month! The board explained the definition of SMA, symptoms, facts and shared Annie's story. It also held 4AnnieGirl.com cards so people could visit our website to learn more. The board is currently displayed for the entire month of August!
SMA Display Boards - Medical Center of BG
Awareness Month - August 1 thru August 31
Thank You to OB nurses, Amy Ausbrooks and Sarah Beth Harrison for giving us the opportunity to display our SMA information board on the OB floor of The Medical Center of Bowling Green! Many nurses and doctors are not aware of SMA and these nurses were very open to learning more about this disease and how to help others! The board explained the definition of SMA, symptoms, facts and shared Annie's story. It also held 4AnnieGirl.com cards so people could visit our website to learn more. The board is currently displayed for the entire month of August!
Awareness Month - August 1 thru August 31
Thank You to OB nurses, Amy Ausbrooks and Sarah Beth Harrison for giving us the opportunity to display our SMA information board on the OB floor of The Medical Center of Bowling Green! Many nurses and doctors are not aware of SMA and these nurses were very open to learning more about this disease and how to help others! The board explained the definition of SMA, symptoms, facts and shared Annie's story. It also held 4AnnieGirl.com cards so people could visit our website to learn more. The board is currently displayed for the entire month of August!
WBKO MIDDAY LIVE Interview with Hayley Harmon
SMA Awareness Month - August 18, 2011
Thank you to Hayley Harmon and WBKO for helping us raise SMA Awareness in Southcentral KY! During SMA Awarness Month, Nicole, Annie's mother was interviewed during Midday Live. 4AnnieGirl.com was promoting the upcoming Hotrods Baseball Game, August 27th and educating on what people need to know about Spinal Muscular Atrophy. (clip attached--may take a few seconds to load.) or visit this link: http://www.wbko.com/video/?auto&topVideoCatNo=default&clipId=6165791&flvUri=&partnerclipid=
Interview with Allyson Kirk
SMA Awareness Month - August 16, 2011
Thank You to MomsEveryday.com for giving us the opportunity to raise SMA awareness! This interview will be aired during Regis & Kelly on Tuesday, August 23rd. We hope lots of people will see the segment and visit our site!
Visit our page on their site:
http://www.momseveryday.com/southcentralkentucky/money/4_Annie_Girl_127958163.html
(clip attached--may take a few seconds to load.)
SMA Awareness Month - August 16, 2011
Thank You to MomsEveryday.com for giving us the opportunity to raise SMA awareness! This interview will be aired during Regis & Kelly on Tuesday, August 23rd. We hope lots of people will see the segment and visit our site!
Visit our page on their site:
http://www.momseveryday.com/southcentralkentucky/money/4_Annie_Girl_127958163.html
(clip attached--may take a few seconds to load.)
Honoring SMA Angels
SMA Awareness Month - August 13, 2011
Families around the country honored SMA angels by lighting a candle at sunset on AUGUST 13th. We were so touched by all of you who lighted your candle in honor of Annie. Many shared their lighted candle with us on facebook. Here are a few pictures.
SMA Awareness Month - August 13, 2011
Families around the country honored SMA angels by lighting a candle at sunset on AUGUST 13th. We were so touched by all of you who lighted your candle in honor of Annie. Many shared their lighted candle with us on facebook. Here are a few pictures.
Dr. Lyons Supports SMA Awareness
SMA Awareness Month - August 1, 2011
Dr. Karen Lyons supports SMA awareness in her OB GYN office. Each exam room now holds a 12x12 framed picture of Annie, Nicole's forever 9 month old daughter, with information on SMA including statistics, the definition of SMA and how to learn more! THANK YOU Dr. Lyons!
SMA Awareness Month - August 1, 2011
Dr. Karen Lyons supports SMA awareness in her OB GYN office. Each exam room now holds a 12x12 framed picture of Annie, Nicole's forever 9 month old daughter, with information on SMA including statistics, the definition of SMA and how to learn more! THANK YOU Dr. Lyons!
CoCoa's 4 Annie
Savannah, GA
June 11, 2011
Wilmington Family Dental & Howard Dental Group joined Cocoa's Martini & Dessert Bar in Savannha, GA to raise Spinal Muscular Atrophy awareness...4 Annie! This family event included live music, food, auction and specialty desserts--AnnieGirl cupcakes & brownies! Annie Girl supporters also enjoyed a night at the ballpark with the Savannah Sand Gnats sponsored by Howard Dental Group!
Dr. Christy (a/k/a "Aunt Christy) and Cocoa's graciously planned this event to support SMA with proceeds benefiting the Families of SMA in Annie's memory! Online donation were accepted by visiting: http://www.fsma.org/GiftReg/Cocoas4Annie . Together we raised over $4200 for Families of SMA! Thank you to Michelle Spires, Michelle & Tony, Howard Dental Group and all supporters in Savannah! You were simply amazing!
Savannah, GA
June 11, 2011
Wilmington Family Dental & Howard Dental Group joined Cocoa's Martini & Dessert Bar in Savannha, GA to raise Spinal Muscular Atrophy awareness...4 Annie! This family event included live music, food, auction and specialty desserts--AnnieGirl cupcakes & brownies! Annie Girl supporters also enjoyed a night at the ballpark with the Savannah Sand Gnats sponsored by Howard Dental Group!
Dr. Christy (a/k/a "Aunt Christy) and Cocoa's graciously planned this event to support SMA with proceeds benefiting the Families of SMA in Annie's memory! Online donation were accepted by visiting: http://www.fsma.org/GiftReg/Cocoas4Annie . Together we raised over $4200 for Families of SMA! Thank you to Michelle Spires, Michelle & Tony, Howard Dental Group and all supporters in Savannah! You were simply amazing!
2nd Annual Crop 4 Annie
Greenwood Park Church of Christ
April 16, 2011
The 2nd Annual Crop 4 Annie was a great success! Thank you to all 28 scrapbookers who attended and everyone that participated in our silent auction. We had some great support! We were proud to present the Families of SMA with $2,375 from this event in Annie's memory!
Greenwood Park Church of Christ
April 16, 2011
The 2nd Annual Crop 4 Annie was a great success! Thank you to all 28 scrapbookers who attended and everyone that participated in our silent auction. We had some great support! We were proud to present the Families of SMA with $2,375 from this event in Annie's memory!
| 2011 Crop 4 Annie Silent Auction Items |
Disney's Princess Half Marathon
& Disney's Beauty and the Beast 5K
Disney World, Orlando, FL
February 25-27, 2011
Once upon a time, in a magical kingdom, a group of princesses embarked on a noble journey....running 4 Annie and raising SMA awareness!
Team Annie is excited to announce that we raised $3,500 for the Families of SMA during our Run 4 Annie event! Thank you to Christy Cole Harpring and Jenny Jones Neville for running in Orlando, FL in memory of Our Annie Girl! The Half Marathon featured over 18,000 runners and the 5K had nearly 5,000 runners!
& Disney's Beauty and the Beast 5K
Disney World, Orlando, FL
February 25-27, 2011
Once upon a time, in a magical kingdom, a group of princesses embarked on a noble journey....running 4 Annie and raising SMA awareness!
Team Annie is excited to announce that we raised $3,500 for the Families of SMA during our Run 4 Annie event! Thank you to Christy Cole Harpring and Jenny Jones Neville for running in Orlando, FL in memory of Our Annie Girl! The Half Marathon featured over 18,000 runners and the 5K had nearly 5,000 runners!
Dine with The Buckhead Cafe...4 Annie
The Buckhead Cafe, Bowling Green, KY
January 24, 2011
Thank You to The Buckhead Cafe for hosting such a great event!
We are proud to announce that we raised $1,209 for Families of SMA! The Buckhead Cafe graciously donated 10% of their sales to FSMA. Along with their support and donations we were thrilled with the success. Thank you to everyone who supported this event!
The Buckhead Cafe, Bowling Green, KY
January 24, 2011
Thank You to The Buckhead Cafe for hosting such a great event!
We are proud to announce that we raised $1,209 for Families of SMA! The Buckhead Cafe graciously donated 10% of their sales to FSMA. Along with their support and donations we were thrilled with the success. Thank you to everyone who supported this event!
Ice Cream & Pajama's 4 Annie
Taylor Christian Camp 6th Annual Ladies Scrapbook Retreat
November 11-14, 2010
Thirty-two "serious" scrapbookers, got all dressed in their pink pj's and enjoyed a great ice cream party to raise SMA awareness! Thank you Janet Kay Brown for suggesting this great idea at this year's retreat! The ladies were a huge support and raised $385 for the Families of SMA! It was an honor to speak to this group and raise awareness
....4 Annie! Thanks girls for your continued prayers!
Taylor Christian Camp 6th Annual Ladies Scrapbook Retreat
November 11-14, 2010
Thirty-two "serious" scrapbookers, got all dressed in their pink pj's and enjoyed a great ice cream party to raise SMA awareness! Thank you Janet Kay Brown for suggesting this great idea at this year's retreat! The ladies were a huge support and raised $385 for the Families of SMA! It was an honor to speak to this group and raise awareness
....4 Annie! Thanks girls for your continued prayers!
THANK YOU ZAXBY'S!
Bowling Green Zaxby locations
October 21, 2010
All three Zaxby locations in Bowling Green, participated in "Dine 4 Annie" on Thursday, October 21st. 10% of the sales that night benefit Families of SMA in Annie's memory. Zaxby's gave $850 to this cause from sales and then also made a matching donation for a total contribution of $1300!! THANK YOU ZAXBY's for such a wonderful event and your support!
Bowling Green Zaxby locations
October 21, 2010
All three Zaxby locations in Bowling Green, participated in "Dine 4 Annie" on Thursday, October 21st. 10% of the sales that night benefit Families of SMA in Annie's memory. Zaxby's gave $850 to this cause from sales and then also made a matching donation for a total contribution of $1300!! THANK YOU ZAXBY's for such a wonderful event and your support!
Happy 1st Birthday Annie!
Celebrate & Raise SMA Awareness
Jackson's Orchard - October 13, 2010
There are many expressions of thank's that need to be sent! This event could not have been possible without the great support from family and friends! THANK YOU to everyone who made this day such a great success!
Our Parents:
Joey & Shelia Violette
Ronald & Ernestine Grimes
Kathy Barton
Amanda Phelps
Medical Center ER staff
Econo Signs
PIP Printing
Dr. Karen Lyons
Pediatric Associates
Ashley Hudnall
Emily Comer
Joanna Ballard
Christy Harpring
April & Scott Harper
Charles White Advertising
Photography by Gabrielle
Jennifer Shuffett
Jill Reneau
Ashley Jones
Rhonda White/Warren East Middle School
The Vogler/Milam Families
Larry Atkinson
WBKO
Celebrate & Raise SMA Awareness
Jackson's Orchard - October 13, 2010
There are many expressions of thank's that need to be sent! This event could not have been possible without the great support from family and friends! THANK YOU to everyone who made this day such a great success!
Our Parents:
Joey & Shelia Violette
Ronald & Ernestine Grimes
Kathy Barton
Amanda Phelps
Medical Center ER staff
Econo Signs
PIP Printing
Dr. Karen Lyons
Pediatric Associates
Ashley Hudnall
Emily Comer
Joanna Ballard
Christy Harpring
April & Scott Harper
Charles White Advertising
Photography by Gabrielle
Jennifer Shuffett
Jill Reneau
Ashley Jones
Rhonda White/Warren East Middle School
The Vogler/Milam Families
Larry Atkinson
WBKO
Hats On 4 Annie
Local Schools Raise Awareness
Potter Gray Elementary - September 24, 2010
Potter Gray reached out to our family after knowing us for only three days. On the third day of school, Annie passed away leaving a lasting impression. The school immediately showed their support and wanted to help raise awareness. THANK YOU Potter Gray for this great idea! Due to their great support, we had seven more schools join in with our efforts. Together we raised nearly $3,000! THANK YOU to the following participants:
Potter Gray Elementary $1,460
Bristow Elementary $245
Briarwood Elementary $458.50
Richardsville Elementary $111
Warren East Middle School $240
Drakes Creek Middle School $51
Warren East High School $250 (estimated)
Foundation Christian Academy $176
More pictures coming soon!
Local Schools Raise Awareness
Potter Gray Elementary - September 24, 2010
Potter Gray reached out to our family after knowing us for only three days. On the third day of school, Annie passed away leaving a lasting impression. The school immediately showed their support and wanted to help raise awareness. THANK YOU Potter Gray for this great idea! Due to their great support, we had seven more schools join in with our efforts. Together we raised nearly $3,000! THANK YOU to the following participants:
Potter Gray Elementary $1,460
Bristow Elementary $245
Briarwood Elementary $458.50
Richardsville Elementary $111
Warren East Middle School $240
Drakes Creek Middle School $51
Warren East High School $250 (estimated)
Foundation Christian Academy $176
More pictures coming soon!
